Members matter ...
New Data Analysis Sheds Light on Bleeding Patterns in Young VWD Patients
Historically, data on infants and toddlers (ITs) with von Willebrand disease (VWD),particularly relevant to bleeding patterns, has been lacking. To address this absence of data, a team of researchers from the U.S. Hemophilia Treatment Center Network (USHTCN) and the Centers
HFM Advocacy: Accumulator Adjustment Programs
Make all Copays Count! Many bleeding disorder patients use co-pay assistance, such as co-pay cards or manufacturer coupons, to pay for their life-saving medications. Pharmacy benefit managers (PBMs) and insurers increasingly use co-pay accumulator programs to prevent such assistance from
Meet the HFM Team
Our members volunteer their time to organize events, educate the public and advocate for improved healthcare access and research.
Emma Miller
Jamie Edwards
Natasha Burroughs
President
Natasha Burroughs is a compassionate leader with a deep personal connection to the hemophilia community, recently appointed as President of the Hemophilia Foundation of Maryland. As a mother of two boys with severe hemophilia and living with mild hemophilia herself, Natasha intimately understands the triumphs and trials that come with navigating life with a bleeding disorder.
Shanika Jordan
Vice President
Shanika Jordan is a dedicated advocate and integral member of the Hemophilia Foundation of Maryland (HFM) community, serving as Vice President. Her journey into advocacy began as a mother, with a son and grandson both diagnosed with severe hemophilia B, and a daughter with mild hemophilia.
Kimberly Rook
Treasurer
Kimberly Rook is a devoted advocate, mother, and pivotal figure in the hemophilia community. As the mother of a child with severe hemophilia and with a family history of the disorder, she passionately champions for increased support, education, and research. Kimberly’s tireless efforts aim to empower and improve the lives of those affected by hemophilia, emphasizing the importance of awareness and ongoing research to drive positive change.
Adam Smith
Secretary
Adam Smith brings a blend of personal experience and unwavering support to his role as Secretary of the Hemophilia Foundation of Maryland (HFM). As a father to a son with hemophilia and a daughter with von Willebrand disease, Adam understands the challenges and complexities faced by families affected by bleeding disorders.
Elizabeth Reimer
Elizabeth is a mom of 3 boys, one of whom was diagnosed with hemophilia A at age 2 1/2 years old. With no family history of hemophilia, she was introduced to the wonderful group of people at HFM who helped her to navigate a new path. Her goal continues is to give back to the community by serving on the board as a resource and friend for other families who are learning to live with a bleeding disorder.
Jennifer Marlatt, DNP, MSN, RN
Board Member
Jennifer has been an active member of the Hemophilia Foundation of Maryland (HFM) since her son was born in 2005. He was diagnosed with Hemophilia B at birth. She also lost a brother to hemophilia B when he was just two weeks old. In addition to her son, she is the mother of three daughters. Jennifer is an Associate Professor of Nursing at the Community College of Baltimore County where she is the Nursing Simulation Lab Director.
William Hoffman, Esq.
Board Member
William has a son with Hemophilia A. He is employed by the Department of Education and is a retired Naval Officer. William is an excellent advocate at the state and federal level for hemophilia families. He’s also a pretty awesome Race to Stop the Bleeding Master of Ceremonies!
Annette Maurits
Honorary Board Member
Annette is an Honorary HFM Board Member and one of its founding members, highly respected within the bleeding disorder community. As a hemophilia carrier and the mother of an adult son with severe hemophilia, she has been a staunch advocate for the bleeding disorders community since her son’s diagnosis. HFM would not be the organization it is today without Annette’s guidance and dedication.
