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Advocacy

HFM Advocacy
Advocacy is a key part of the mission of the Hemophilia Foundation of Maryland (HFM). HFM works to educate elected officials and other key stakeholders about hemophilia and other related inherited bleeding disorders. Every year HFM hosts our Advocacy Training and Maryland Days where constituents from around the state gather for training and meetings with their elected state officials to share their story and educate them about current issues affecting the hemophilia/bleeding disorders community. HFM also participates in the National Hemophilia Foundation’s annual Washington Days. This event provides an opportunity for constituents from across the nation to come together to learn about advocacy, discuss key issues impacting access to care, meet with elected officials, and put a face on hemophilia/bleeding disorders.
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Want to join our efforts but not sure where to start? Make a donation, join our Foundation as a member or volunteer your time and take advantage of this incredible opportunity to lend your support. These are great ways to contribute to our causes, and every little bit goes towards supporting the mission of the Hemophilia Foundation of Maryland.

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Help is Our Main Goal

We influence those who make a difference

We have a stated mission to advocate on behalf of our members. Advocacy happens every day and there are many ways to participate in advocacy activities throughout the year, including:

  • Writing letters to your elected officials regarding proposed changes to law or regulations
  • Meeting with other state decision-makers, including state departments of insurance and Medicaid agencies
  • Educating health plans about the needs of the bleeding disorders community
  • Educating schools and employers about the needs of the bleeding disorders community
  • Advocating to your health care provider about your unique health care needs


If you are interested in learning more about advocacy and becoming a better advocate, take a few moments to explore the tools and resources below:

Maryland State Resources

Federal Resources

Copay Accumulator Patient Impact:

In the age of high deductibles and patient out of pocket expenditures, more and more people depend on copay assistance to afford their life-saving specialty medications. This video demonstrates how Copay accumulator adjustments affect patients requiring specialty medications with no generic alternatives. Learn more at hemophilia.org

Hemophilia Foundation of Maryland (HFM)

13 Class Court Parkville, MD 21234