May 8, 2024
In the realm of managing a bleeding disorder, education is power, and empowerment is key. Recently, our community experienced a remarkable event that epitomized this sentiment – the Hemophilia Foundation of Maryland (HFM)’s infusion workshop in collaboration with the Johns Hopkins Hemophilia Treatment Center (JHH HTC). This gathering wasn’t just about learning; it was about equipping individuals and families with the knowledge and confidence to take charge of their health journeys.
At the heart of this event were the dedicated professionals from the Johns Hopkins HTC team, led by Beth Merz, LCSW, and Kim Drucis, CRNP. Their expertise and commitment laid the foundation for an incredibly enriching experience. From planning every detail to ensuring a supportive environment, their contribution was indispensable.
For the attendees, the workshop wasn’t just another event on the calendar. It was a transformative experience, a chance to delve deep into the intricacies of hemophilia management. One hemo momma, in particular, emerged from the workshop with a tangible symbol of her newfound skills – her “big stick.” This simple yet powerful emblem represents not just the physical act of infusion but also the emotional strength and resilience gained through education and support.
But perhaps the most inspiring aspect of the workshop was the sense of empowerment it instilled in everyone present. Hemophilia can be daunting, with its complexities and uncertainties. However, when armed with knowledge and surrounded by a supportive community, the journey becomes less daunting and more manageable.
The event was a testament to the power of collaboration – between healthcare professionals, advocacy organizations like HFM, and the individuals and families affected by hemophilia. It highlighted the importance of coming together, sharing experiences, and lifting each other up.
As we reflect on the success of this workshop, we eagerly anticipate what the future holds. Plans are already underway for the next gathering, where we will continue to build on the momentum of empowerment and education. Stay tuned for details, as we embark on this journey together, united in our commitment to thriving with hemophilia.
In conclusion, the infusion workshop with the Johns Hopkins Hemophilia Treatment Center was more than just a learning opportunity; it was a celebration of empowerment. We extend our heartfelt gratitude to Beth Merz, Kim Drucis, and the entire JHH HTC team for their dedication and support. Also a huge thank you to Roland G. for his fabulous infusion technique demonstration. And to all who attended, remember – with knowledge and community by our side, there’s no limit to what we can achieve.
